Baby Care Advice » Congenital Abnormalities http://birthpolicy.org Thu, 16 Dec 2010 14:38:16 +0000 en hourly 1 http://wordpress.org/?v=3.0.1 HAS ANYONE HAD A BABY BORN WITH CLUBFOOT IN THE PAST 5-YEARS? http://birthpolicy.org/499/has-anyone-had-a-baby-born-with-clubfoot-in-the-past-5-years/ http://birthpolicy.org/499/has-anyone-had-a-baby-born-with-clubfoot-in-the-past-5-years/#comments Sun, 28 Nov 2010 07:19:30 +0000 admin http://birthpolicy.org/499/has-anyone-had-a-baby-born-with-clubfoot-in-the-past-5-years/

Question by sheila a:
has anyone had a baby born with clubfoot in the past 5-years?

If so, what treatment did he/she receive, and how well did it work?


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Answer by pro_choice_my_right
Wow,no im sorry i have never heard of it? what is clubfoot? is it seriouse? : [

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DOES ANYONE HAVE EXPERIENCE WITH AN INFANT WITH CYSTIC FIBROSIS? http://birthpolicy.org/420/does-anyone-have-experience-with-an-infant-with-cystic-fibrosis/ http://birthpolicy.org/420/does-anyone-have-experience-with-an-infant-with-cystic-fibrosis/#comments Wed, 10 Nov 2010 18:49:54 +0000 admin http://birthpolicy.org/420/does-anyone-have-experience-with-an-infant-with-cystic-fibrosis/ Question by bizzurke:
does anyone have experience with an infant with cystic fibrosis?

my one month old was diagnosed with cystic fibrosis this week…and i was just wondering if anybody had any experience with an infant or just anyone who had it. like…what are difficulties you have face and what not?

thanks <3


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Answer by jacksgurl
Yes I do my daughter is 8 months old and was diagnosed when she was a week old. She takes viatamins once a day, she also has to take enzymes before each time she eats, and we have to add salt to one of her bottles or food. For her condition she is actually in really good shape but you have to take it each day one day at a time because the physicians will never know how mild or severe of a case your child will have. They will tell you that you just need to do what they tell you to do. For the three months we went once a week each week. They will check your childs weight height and breathing. They will speak to you about their eating habits and their stools so you have to pay close attention to that kind of stuff. Also the baby will cough and sneeze maybe a tiny more than usual due to the fact that they need to help clear their lungs out. I think the biggest difficulties are that its a lot of work and that its hard to think people with this disease are only expected to live up until they are 38. But I will keep your child in my prayers and if you have any questions or concerns feel free to email me at monkeygurl072003@yahoo.com even if you just want to vent because i know from experience this is a difficult situation that unfortunately some of us have to deal with but ideal of luck.

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DOES A PREMATURE BABY WITH SPINA BIFIDA HAVE A HIGHER CHANCE OF NOT MAKING IT COMPARED TO A HEALTHY BABY? http://birthpolicy.org/357/does-a-premature-baby-with-spina-bifida-have-a-higher-chance-of-not-making-it-compared-to-a-healthy-baby/ http://birthpolicy.org/357/does-a-premature-baby-with-spina-bifida-have-a-higher-chance-of-not-making-it-compared-to-a-healthy-baby/#comments Wed, 10 Nov 2010 18:48:11 +0000 admin http://birthpolicy.org/357/does-a-premature-baby-with-spina-bifida-have-a-higher-chance-of-not-making-it-compared-to-a-healthy-baby/ Question by Bella:
Does a premature baby with spina bifida have a higher chance of not making it compared to a healthy baby?

My sister is 32 weeks pregnant(baby has Spina bifida) and we were wondering would the baby survive if born now? and would the baby have a smaller chance of survival because she has spina bifida?


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Answer by Due Oct 14th..its a boy
With medical technology this day she should be fine, The baby will face some hardships for sure but her chances of survival would be great

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IF ONE PARENT HAS SICKLE CELL DISEASE WILL THE BABY BORN WITH THE DISEASE ALSO? http://birthpolicy.org/264/if-one-parent-has-sickle-cell-disease-will-the-baby-born-with-the-disease-also/ http://birthpolicy.org/264/if-one-parent-has-sickle-cell-disease-will-the-baby-born-with-the-disease-also/#comments Fri, 29 Oct 2010 07:53:55 +0000 admin http://birthpolicy.org/264/if-one-parent-has-sickle-cell-disease-will-the-baby-born-with-the-disease-also/ Question by neky:
if one parent has sickle cell disease will the baby born with the disease also?


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Answer by tommygavin04
I am sure this comes down to the exact makeup of the DNA and the ‘punnet square’ of the two parents. Please research this on a more reputable site than yahoo answers.

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WHAT IS LIFE LIKE FOR BABIES (1-6 MONTHS OLD) WITH SPINA BIFIDA? http://birthpolicy.org/222/what-is-life-like-for-babies-1-6-months-old-with-spina-bifida/ http://birthpolicy.org/222/what-is-life-like-for-babies-1-6-months-old-with-spina-bifida/#comments Mon, 25 Oct 2010 23:19:20 +0000 admin http://birthpolicy.org/222/what-is-life-like-for-babies-1-6-months-old-with-spina-bifida/ Question by Anna Babyyy (::
What is life like for babies (1-6 months old) with spina bifida?

I’m working on a project for science, and i have to take care of an egg baby, which supposedly has spina bifida. I have to write it’s daily activities and what it does. What specific things do babies with spina bifida show? Do they move less than other babies? Are they happy? Are they in pain? Have to be fed more? Please please help!


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Answer by S P
We are not in pain. We are nomal people. We are treated normally. Some of us do not walk, but some of us do. We might have many surgeries, but we are normal people.

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DOES ANYBODY KNOW ABOUT HOW MUCH OF CHILDREN OR INFANTS DIE OF SICKLE CELL DISEASE BEFORE REACHING PUBERTY? http://birthpolicy.org/146/does-anybody-know-about-how-much-of-children-or-infants-die-of-sickle-cell-disease-before-reaching-puberty/ http://birthpolicy.org/146/does-anybody-know-about-how-much-of-children-or-infants-die-of-sickle-cell-disease-before-reaching-puberty/#comments Wed, 22 Sep 2010 15:35:40 +0000 admin http://birthpolicy.org/146/does-anybody-know-about-how-much-of-children-or-infants-die-of-sickle-cell-disease-before-reaching-puberty/ Question by Cookie Jar:
Does anybody know about how much of kids or infants die of sickle cell disease before reaching puberty?

…Like the percent of children?


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Answer by Wendy C
I could not find a percentage of children, but I did some research and tried to find some answers to your question. I also provided links that you can read also in case I missed something. Hope this helps.

People who have sickle cell disease have a reduced life expectancy. Some people can survive beyond their 40′s while others do not survive beyond infancy or early childhood.

http://www.webmd.com/pain-management/pain-management-sickle-cell-disease

A blood test used to detect heart disease might predict death in people with sickle cell anemia.

http://www.webmd.com/news/20051214/test-predicts-death-from-sickle-cell

Over the past 25 years, morbidity and mortality have decreased significantly in kids with sickle cell disease, and screening tests are now available to diagnose the disease in newborns. The incidence of sepsis caused by pneumococcal and Haemophilus influenzae infections has declined because of the prophylactic administration of penicillin soon after birth and the timely administration of pneumococcal and H. influenzae type b vaccines. Optimal nutrition can maximize growth in kids with sickle cell disease, and timely screening can identify complications such as retinal damage and chronic renal involvement, thereby ensuring prompt treatment. Family doctors and parents who have been educated about sickle cell disease can detect acute, life-threatening complications such as splenic sequestration crisis and acute chest syndrome at their onset, thereby allowing treatment to be instituted without delay.

http://www.aafp.org/afp/20000901/1013.html

If successful, a bone marrow transplant can cure sickle cell disease. Even though only used in choose cases, it is successful in almost 85% of transplant recipients. Another 10% survive, despite transplant complications and/or failure. About 5% percent of bone marrow transplant recipients die following the procedure.

http://www.webmd.com/cancer/Bone-marrow-transplant-for-sickle-cell-disease

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I AM CURRENTLY SUFFERING WITH ABDOMINAL CRAMP LIKE PAIN AND AM GETTING A GREENISH STRINGY VAGINAL DISCHARGE.? http://birthpolicy.org/39/i-am-currently-suffering-with-abdominal-cramp-like-pain-and-am-getting-a-greenish-stringy-vaginal-discharge/ http://birthpolicy.org/39/i-am-currently-suffering-with-abdominal-cramp-like-pain-and-am-getting-a-greenish-stringy-vaginal-discharge/#comments Fri, 20 Aug 2010 07:23:56 +0000 admin http://birthpolicy.org/39/i-am-currently-suffering-with-abdominal-cramp-like-pain-and-am-getting-a-greenish-stringy-vaginal-discharge/ Question by melizza777uk:
I am currently suffering with abdominal cramp like pain and am getting a greenish stringy vaginal discharge.?

Last year an anaerobic bacteria was found in some laboratory tests and i was treated with a course of Flagyl.As the symptoms persisted i ended up having to take 3 courses in the end resulting with clear results in april.during this time i had numerous urine infections(only one test showed that i had an infection however!)and re-occurring vaginal thrush.I had a baby 20 months ago and was ill shortly after the birth for 3 weeks with an unknown infection and have felt unwell with gynacological and abdominal problems ever since.I have a history of gallbladder/stones and coeliac disease in the family also.My last lot of general blood tests came back pretty good but that was in april and since then the abdominal pain and vaginal discharge has come back.Pleasecan you help,i feel very exhausted and depressed from these ongoing problems.thankyou


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Answer by hello
ur probably getting ur period thats what

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IF MY BABY IS BORN WITH SICKLE CELL DISEASE DOES ME AND HER FATHER HAVE TO HAVE THE TRAIT? http://birthpolicy.org/36/if-my-baby-is-born-with-sickle-cell-disease-does-me-and-her-father-have-to-have-the-trait/ http://birthpolicy.org/36/if-my-baby-is-born-with-sickle-cell-disease-does-me-and-her-father-have-to-have-the-trait/#comments Fri, 20 Aug 2010 07:21:20 +0000 admin http://birthpolicy.org/36/if-my-baby-is-born-with-sickle-cell-disease-does-me-and-her-father-have-to-have-the-trait/ Question by Kenya G:
If my baby is born with Sickle Cell disease does me and her dad have to have the trait?

i have the trait but i am not sure if her dad has the trait to but she has the disease


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Answer by a2008rn
Sickle cell is what is known as an autosomal recessive trait, which means that the child receives one trait from each parent. That means that both you and the baby’s dad must be carriers of the sickle cell trait, even if you do not actually show the signs and symptoms of the disease.

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IS G6PD DEFICIENCY RELATED TO SICKLE CELL DISEASE? IF IT IS SO, WHAT ARE THE NO NO’S FOR A SICKLE CELL PATIENT http://birthpolicy.org/35/is-g6pd-deficiency-related-to-sickle-cell-disease-if-it-is-so-what-are-the-no-nos-for-a-sickle-cell-patient/ http://birthpolicy.org/35/is-g6pd-deficiency-related-to-sickle-cell-disease-if-it-is-so-what-are-the-no-nos-for-a-sickle-cell-patient/#comments Fri, 20 Aug 2010 07:19:19 +0000 admin http://birthpolicy.org/35/is-g6pd-deficiency-related-to-sickle-cell-disease-if-it-is-so-what-are-the-no-nos-for-a-sickle-cell-patient/ Question by yolly g:
is g6pd deficiency related to sickle cell disease? if it is so, what are the no no’s for a sickle cell patient

my nephew had beeen diagnosed with g6pd deficiency on his newborn screening. I heard this has got to do with sickle cell . How true? My concern is on the restrictions linked on this sickness, food restrictions, medicines, physical activities, daily routines. I heard sickle cell patients should be banned from things like flavia beans, airplane rides,etc.


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Answer by N
Sickle cell and G6PD are two absolutely different diseases. The only thing they have in common is that they cause anemia, however the mechanisms are absolutely different as are the treatments.

http://www.nlm.nih.gov/medlineplus/ency/article/000528.htm

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